IV annual conference on als
April, 14. 2018
Presentations and reports
Helping people with ALS in Russia: yesterday, today, tomorrow
Natalia Semina, Chairman of Council of Live Now Foundation (Moscow)

Slides
MASITINIB in the treatment of ALS: positive results of phase three studies
Dr. Jesus Mora, Head of Multidisciplinary Service for ALS patients at Hospital San Rafael (Madrid, Spain)

Start of MASITINIB study in Russia: how to participate?
Lev Brylev, Neurologist, PhD, Head. 1st Department of Neurology of the V.M. Buyanov State Clinical Hospital, Medical Director of Live Now Foundation (Moscow)

Slides
PROJECTMINE: International genetic study to find causes of ALS
Vera Fominykh, neurologist of the V.M. Buyanov State Clinical Hospital, expert of Live Now Foundation (Moscow)

Slides
We are strong together — how to get involved in work of foundation
Daria Markova, Coordinator of Council of Families of Live Now Foundation (Moscow)
Ekaterina Glazkova, Council of Families of Live Now Foundation (Moscow)

Slides
How to take opportunity and help
Tatiana Kondra, Fundraising Manager of Live Now Foundation (Moscow)

Slides
Possibilities of DNA diagnostics with ALS
Ilya Kanivets, Geneticist, PhD, Head of the Genetics Department of the Genomed Medical and Genetic Center (Moscow)

Slides
The effect of music therapy on breathing and swallowing during ALS
Alisa Apreleva, M.A., B.M., MT-BC (accredited music therapist, USA), expert of Live Now Charity Foundation (Boston, USA)
Maria Ilchenko, music therapist of the field service of assistance to people with ALS at St. Alexei Central Clinical Hospital, research assistant (Moscow)

Slides
How can creative volunteers help?
Ksenia Nazarova, coordinator of group of creative volunteers of Live Now Charity Foundation (Moscow)

Slides
Algorithms for providing assistance to patients and their families in Moscow and St. Petersburg
Anna Kasyanova, Head of the field service for people with ALS at St. Alexy Central Clinical Hospital, coordinator of Help Centers program of Live Now Charity Foundation (Moscow)
Vera Demeshonok, Neurologist, head of field service for people with ALS at GAOORDI

Slides
Morphine for shortness of breath: personal experience and medical assessment
Yaroslava Krasnaya, therapist of field service for helping people with ALS at St. Alexy Hospital (Moscow)

Презентация
Physical therapy in early stages of ALS
Timur Ivanov, doctor of physical therapy of field service of assistance to people with ALS at St. Alexy hospital, chief physician of April Rehabilitation center (Moscow)

Slides